Paul was diagnosed with Pick's disease in his 50s. His wife Penny explains how the clubs that Paul has taken part in have been a great help to both of them.
Initially Paul refused to visit any clubs as he felt they were for the elderly. I have to agree I felt the same. What Paul needed was something that could enable him to keep up his hobbies and enjoyment.
Paul feels he has now made friendships with others living his journey and with the wonderful people caring for him, having found suitable clubs.
Paul’s needs are met very well and he comes home and can engage in conversation about what he's been up to, which for me is very special. It has boosted his confidence and has given him a sense of belonging and feeling of worth - this is something he lacked for some time before the clubs.
For me, it meant I could continue my role in a job which I feel very passionate about. This enables me to immerse myself and gives me the opportunities to have a break from caring.